My head continues to spin. I was fortunate enough to be able to attend the Beyond Batten Foundation’s 1st ever in-person meeting on the...

We are so incredibly overwhelmed with the love and generosity of our village near and far. We would love to be able to thank each of you...

As you may remember, we have been trying to find the source of Cecilia (age 8) and Lilly's (age 6) vision loss through genetic testing. ...